This week I am thankful that the neurologist finally called Hailey’s pediatrician back.  He had looked at the video we had taken of her rolling her eyes.  He said that this is something that some children do as their brains are maturing and that they out grow it.  He said it did not look at all like a seizure or anything to be worried about.  He said he didn’t even feel that we needed to do an EEG because he is so confident that it is nothing to worry about.  The neurologist who looked at the video has been working with children and specializing in seizures for many years and I trust his opinion.  I am extremely thankful for this news.  Even so, while it did make me feel better I had kind of hoped to have the EEG just to be totally sure.
 
We also left a video with Hailey’s ophthalmologist to look at.  He is very specialized in this area and can refer us to a neurological ophthalmologist if he thinks it’s necessary.  So, we are waiting for him to call us back with his opinion.  When we described to him what Hailey has been doing he had the exact same opinion as the neurologist- while it’s not common it is something that some children do when their brains are maturing and it is something they out grow.  If he calls us and tells us it’s nothing to worry about even after he has seen the video I’ll be fine with that as it will be two different very specialized professionals giving us the same opinion.

I am thankful that the area will live in has some highly professional doctors who are specialized in these fields.  I know many people do not have nearby access to such wonderful professionals.

If there is any new information I will certainly post about it.  Otherwise, I am hoping this worry is behind us and I can concentrate on worrying about the the trigger thumb we found out Hailey has that she will need surgery for.
 
Once again- I am so thankful for all of the kind comments and emails you all have been sending me- and of course- I’m especially thankful for your prayers.

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I am thankful that we have electricity.  A few of weeks ago our power went out because of high winds.  It wasn’t out all that long- only about eight hours.  But, it reminded me that we take so much for granted.  There were several times that I flipped light switches, expecting a light to come on.  At one point I thought, “Oh, I’ll go do some laundry since the internet isn’t working.”  And then I remembered the washer and dryer wouldn’t be working either.  Anyhoo- it made me realize that I take a lot of that kind of stuff for granted.  We had very high winds again yesterday and even though the lights flickered and the internet didn’t work for most of the morning (gasp!) the power stayed on.  For that I am thankful!

I am thankful for the nice time we had last weekend while we took a little trip “home” and stayed at my parents house.  As always we had a blast.  We were also able to spend some time with some of Rich’s family and had a very nice time with them too.  We love being “home” and if we could we would just pack up and move back “home” tomorrow.  We don’t like it where we live and we hate being away from our families….. ooops this is supposed to be a thankful list.  So, I am thankful for the nice visit we had and I will continue hoping for the day when we can move back ”home.” 

I am thankful for the nice distraction it was to be away visiting family.  So many days I just worry about what is going on with Hailey (you can read about my concerns here, here and here) and feeling worried all of the time can get pretty overwhelming.  So, it was very nice to have some distraction from all of the worrying I am usually doing.

I am thankful for all of the kind comments and emails I have been getting regarding Hailey.  It means so much to me to know you all really care about what is going on.  I don’t have any new information yet as the pediatrician still hasn’t heard back from the neurologist.  I will post any new information as soon as I have it.  Thanks again for your comments, emails and prayers! 

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If you’ve been reading my blog for a little while then you know about the problems Hailey has been having with her eyes.  If you don’t know and you have an extra minute you can read about it here and here.  If you don’t have an extra minute- to make a long story short- she does an unusual eye rolling thing.  Her doctors have so far kind of brushed off my concerns.  Well, last weekend I was able to get her rolling her eyes on video.  I am so thankful I was finally able to get it on video so that the doctor could see what Hailey is doing.

I brought it to her doctors office on Monday.  On Tuesday I talked to the doctors office and the doctor had sent the video to a pediatric neurologist for him to look at.  I am very thankful that a neurologist will be looking at the video.  While I think pediatricians are wonderful people they are not brain specialists.  The doctors office told me to give the neurologist a few days to look at the video, then he will call the pediatrician back and tell her what he thinks.  And, then the pediatrician will call us to let us know what the next step will be.  So, after months of worrying and feeling like my concerns were not important to the doctors, I feel like we are finally getting somewhere and I am so thankful for that.

I’ve also gotten a lot of emails and comments from you all about this situation and I am so thankful for that as well.  It means a lot to me to know how many of you care about little ol’ me and what is going on in my life.  Most of all, I appreciate your prayers. 

I will keep posting updates as soon as I know more.

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I am thankful for the wonderful time we spent with our family last week.  We spent several days staying at my parents house and had a wonderful time.  It was great to eat my mom’s awesome cooking (I gained 2 pounds while we were there) and to have extra help with Hailey.  Mostly though it was just so much fun to spend the time there.

My dad usually has a project going on somewhere in the house and he is currently working on remodeling their kitchen and dining room.  He’s been promising my mom he would do this for 22 years, so it’s about time.  Anyhoo- Hailey loved helping my dad (or “Pa” as Hailey has recently started calling him) with whatever he was working on.

Hailey helps Pa with some sanding in the dining room.

Hailey helps Pa set up a new stereo.

Hailey helps Pa play the guitar.  (I don’t think my mom will be very happy that you can see that green door in the background.  It leads to the kitchen that is being remodeled, so I assume that one day it will be painted a different color)

Anyhoo, I am so thankful for the way that my parents are with Hailey.  I absolutely love watching them together.

We were also finally able to celebrate Christmas with Rich’s side of the family.  We had originally planned to do that the weekend before Christmas, but then Hailey was sick and we didn’t think it would be a good time to travel.  So, this weekend was the first chance we have had to get together with them to celebrate Christmas.  It was a wonderful time and I always enjoy the time we get to spend with them.  Hailey enjoyed herself while we were at their house with all sorts of new things to explore.  And, also a different dog to play with make very nervous.  I am thankful for the nice time we had with Rich’s side of the family and I am thankful to have these wonderful people in our lives. Would you believe that we didn’t take any pictures while we were there?  Well, believe it- so I don’t have any pictures to share with you. 

Lastly, I am thankful that the DVD player worked on the way to visit our family.  Because it did not work on the way home and it was a bit unpleasant.  Because Hailey?  She did not sleep, not one little wink, for the entire ride home.

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